Miles and Smiles Bicycle Ride and Rally
If you have read my blog for any length of time, you have probably read that my son and I are both affected by Hay Wells Syndrome, which is a…
Posted inFamily
NFED Apple Classic
My family and I attended the 19th Annual NFED Apple Classic Golf Tournament on June 6th. There was quite a turn out of golfers and the day was absolutely gorgeous! …
Posted inFamily
Six of Us and AEC
I've mentioned in previous posts that six of us in my family are affected by AEC syndrome, which is one of the ectodermal dysplasias syndromes. The ectodermal dysplasias (ED's) are…
Posted inFamily
The Adoption Application
As I mentioned, we just sent the adoption application portion of our adoption paperwork. We checked into international adoption, but ran into several road blocks. First of all, I am…
Posted inLifestyle
The Adoption Paper Chase
Oh my word, has it ever been busy over here! Between travel, shocking myself (literally), my baby hitting milestones, and starting the adoption paper chase. I feel like I'm running…
Posted inFamily
2008 Annual NFED Family Conference
The 2008 Annual NFED Family Conference was a huge success! At least, in my humble opinion. We attend the annual NFED Family Conference whenever we are able to, and we…
Posted inFamily
2008 NFED Family Conference
My family will be attending the 2008 NFED family conference in Iowa next week. I have attended family conferences in the past. But, this year is different. First of all, I…