Posted inFashion
The Dress and The Gala
So, I promised photos of my purple dress that I asked ya’ll about… so, here is one of me and Hubs. I decided to go with a black sweater and…
Creative Fundraising for cHAIRity
As some of you may know, I used causes.com on Facebook to raise funds for the NFED for my birthday. I was pretty impressed with the $200 something I raised…
Posted inFitness
Getting Fit- No Sweat
One of the challenges that I face in my quest of Getting Fit is the fact that I am affected by Hay Wells Syndrome (HWS).
Posted inLifestyle
Help Me Help Others Smile
As many of you know, the NFED is an organization that is VERY near to my heart. As one of the founding members of the NFED, I have often thought…
Miles and Smiles Bicycle Ride and Rally
If you have read my blog for any length of time, you have probably read that my son and I are both affected by Hay Wells Syndrome, which is a…
Grace is Enough
This evening, as we were going through our nightly routine of getting the kids to bed, I noted that the thermostat said it was 75 degrees in the house. For…
Posted inReviews
Ima Nobody Becomes Somebody Review
Were you ever bullied? I certainly was. I was different. Still am, and proud of it. But, as a child, being different isn’t necessarily always fun. I am affected by…
Posted inFamily
Manic Monday
Do you remember the 1980’s song by the Bangle’s, Manic Monday? The lyric goes… It's just another manic Monday I wish it was Sunday 'Cause that's my funday My I…
Posted inFamily
NFED Apple Classic
My family and I attended the 19th Annual NFED Apple Classic Golf Tournament on June 6th. There was quite a turn out of golfers and the day was absolutely gorgeous! …
Posted inFamily
Six of Us and AEC
I've mentioned in previous posts that six of us in my family are affected by AEC syndrome, which is one of the ectodermal dysplasias syndromes. The ectodermal dysplasias (ED's) are…