Smashing the Limits #ToughIs @Brawny
Disclosure: This is a compensated campaign that I am participating in with Brawny. All opinions are my own and do not reflect those of the brand. I remember it like…
Bald is Beautiful
If you've been around a minute, one thing you know about me is that I proudly rock my bald head. I've been bald all of my life, because of the…
Run 2 Sweat Virtual Run @NFED_ORG #Run2Sweat
As many of you know, I recently started training for a 10K (which is 11/8) and a 15K (which is 12/14). You may also know that my son and I…
Posted inLifestyle
What Will You Run For?
As I mentioned in my Crowdfunding with TeeSpring post, I was working on a design to benefit the NFED. My son and I, as well as my sister and her…
Shamrocks and Shenanigans
In honor of International Rare Disease Day, a day designed to bring awareness to the many rare diseases which are low in prevalence by high in complexity, I want to…
Don’t Sweat It Walk 2012 Follow Up
On June 30th, my family of four loaded up the van and headed to Mascoutah, Illinois for our first annual Don’t Sweat It Walk 2012, to benefit the NFED. As…
Seeking Sponsors NFED #walk
My family of four is registered to walk in the first annual National Foundation for Ectodermal Dysplasias Don't Sweat It Walk on June 30th. We are asking everyone to consider…
Don’t Sweat It Walk 2012
As you may know, my son and I are both affected by a form of Ectodermal Dysplasia. This year, we are excited to participate in our first annual Don’t Sweat…
Posted inFamily
Foto Friday- Popeye
You know how Popeye always has his right eye squinched shut? My little Mister does the same thing, ANY time bright lights (camera flashes, sunlight) hit his eyes… <—Exploring Missouri’s…
Posted inHealth
Foto Friday- Skin for Science
Mister and I recently had skin biopsies done as part of a scientific research project, which is aimed at finding a cure for the skin erosion's associated with Hay Wells…