As some of you may know, I used causes.com on Facebook to raise funds for the NFED for my birthday. I was pretty impressed with the $200 something I raised from friends and family, to support a cause that is so close to my heart.
And then I learned of the Follicle Fate Fundraising cHAIRity fundraiser that a friend, Sean Vora, did through causes.com. Sean had to grow his hair out for a research project, funded by Edimer Pharmaceuticals, and decided to get creative and start a fundraiser with it. The top two donors will decide how Sean cuts his hair and beard at the end of the fundraiser, which concludes on July 31st.
This is Sean

He is one guy.
One very creative guy.
And to date, he has raised over $5700 to benefit the NFED.
Can he push over the $6000 mark?
Can you help him?
Some of you may have received an invitation from me on Facebook to join the cause. If you haven’t, I invite you to now.
And, if you think you can forgo a movie night or dinner out this month, I would love it if you would donate to the cHAIRity.
I can’t wait until next week, and see what kind of crazy hairdo Sean has to sport in public for a week!
If you would like to learn more about the NFED, you can check out their website here. I encourage you to check out the NFED Facebook Page and NFED Twitter feed as well.
While the Follicle Fate Fundraising cHAIRity fundraiser that Sean spearheaded came to an end in 2011, every donation to the NFED.org makes a difference in the lives of patients affected by ectodermal dysplasia – like Sean and me. So, check out the NFED today, and make a difference.



What a cool guy to do this!
Wow that’s great! Thanks for stopping by. Block Island in part of Rhode Island. You have to take a ferry there. I posted pics and funny story about the trip.
This is awesome!