Mister and I recently had skin biopsies done as part of a scientific research project, which is aimed at finding a cure for the skin erosion’s associated with Hay Wells Syndrome. Mister decided he had to put on some gloves and “help the doctor” to make sure they were treating Mommy right. I went first, and allowed him to watch, so that he could see it wasn’t a big deal to get the biopsy done.
My biopsy was taken from the skin adjacent to my armpit, as that skin tends to heal fairly quickly.
As you can see, it healed beautifully!
Mister’s biopsy was taken from his right hip area. The researcher really wanted skin that had previously had erosions. While his problems areas now are his scalp and ankles, Mister also had erosions across both shoulders, down his spine, and across both hips at birth. Using the fleshy part right above his bottom was perfect, as it is an area not viewed by most , and would fall below the waist band of his undies. He was such a trooper! In fact, since they used the numbing cream on his skin before the biopsy, it wasn’t until THE NEXT DAY that he even realized he had an ouchie. Then he just asked for help pulling up his undies, so he didn’t bump his “scrap.” He calls his boo boo’s “scraps” which is a hybrid of scratch and scrape. LOL.
The doctor that harvested the biopsies was kind enough to use slip knots, so taking the stitch out was easy (and fun).
Mister’s biopsy site healed better than I had even dared to hope! In fact, it is barely noticeable now!
For more information on Hay Wells Syndrome, or any of the other ectodermal dysplasias syndromes, check out http://nfed.org.