My family of four is registered to walk in the first annual National Foundation for Ectodermal Dysplasias Don’t Sweat It Walk on June 30th.
We are asking everyone to consider sponsoring us for the walk, as we are trying to raise $1000 for the NFED. $500 air conditions a room for a child who cannot sweat. I set the goal of $1000 for our family because I KNOW first hand what it is like to have a child who cannot sweat. Mister overheats very easily, and we can’t allow the temperature in our home to go over 73 degrees. If it does, he starts overheating. We have to put ice packs in his car seat when he isn’t in it, because the foam of the carseat absorbs heat and a ten minute car ride can result in a body temp of 104 if we haven’t iced his carseat beforehand. We are fortunate that our cooling bills are within our budget. I know families that aren’t as fortunate.
We are nearly at the halfway mark to our goal of $1000.
The NFED is a 501c3 and donations are tax deductible.
If you would like to donate $5, $10, $25, or even $100 to sponsor my family in the walk, let me know and I can email you the details on where to send the check.
We would also appreciate your prayers. The walk is on June 30th. Mister doesn’t sweat, and I barely sweat, so we will be using our cooling gear to get us through the 5K!